{"id":6524,"date":"2023-06-14T22:27:01","date_gmt":"2023-06-14T22:27:01","guid":{"rendered":"https:\/\/www.sicklecelldisease.org\/?page_id=6524"},"modified":"2024-07-17T18:54:07","modified_gmt":"2024-07-17T18:54:07","slug":"scd-masterclass-on-the-cusp-of-a-cure","status":"publish","type":"page","link":"https:\/\/www.sicklecelldisease.org\/scd-masterclass-on-the-cusp-of-a-cure\/","title":{"rendered":"SCD Masterclass"},"content":{"rendered":"<p>In recognition of Sickle Cell Disease Association of America (SCDAA), Inc.\u2019s 50th anniversary, we have launched this limited, three-part speaker series, Masterclass on Sickle Cell Disease. Leading experts in sickle cell disease focus on novel concepts surrounding disease-modifying and curative therapies and their impact on those living with sickle cell disease. The goal is to approach key sickle cell topics with a fresh, innovative perspective through discussions that have not yet been had. Learn more about the series <strong><a href=\"https:\/\/scdaamasterclass.com\/\">here<\/a><\/strong>.<\/p>\n<h3>UPCOMING SESSIONS<\/h3>\n<p>TBD<\/p>\n<hr \/>\n<h3 style=\"text-align: left;\">PREVIOUS SESSIONS<\/h3>\n<p><strong>2023 Seminar One<\/strong><\/p>\n<p>Gene Therapy: A Journey Forward<\/p>\n<p>Our panelists, including SCDAA Chief Medical Officer Lewis Hsu, M.D., and Edward Donnell Ivy, M.D., SCDAA vice chief medical officer, explore the role of gene therapy in our journey forward. The discussion is moderated by Andrew Campbell, M.D., director of the Children&#8217;s National Comprehensive Sickle Cell Disease Program.<\/p>\n<p><strong><a href=\"https:\/\/youtu.be\/O-rlOAXhIGE\">WATCH NOW<\/a><\/strong><\/p>\n<p><strong>2023 Seminar Two<br \/>\n<\/strong>All Things Considered &#8211; SCD Treatment: A Personal Choice<\/p>\n<p>Co-hosts Teonna Woolford and Dr. Wanda Whitten-Shurney will discuss the many considerations that go into making a decision to choose disease modifying treatments or curative therapies. Panelists will include speakers who share their lived SCD experiences, the choices they made and why.<\/p>\n<p><strong><a href=\"https:\/\/scdaamasterclass.com\/live-event\">WATCH NOW<\/a><\/strong><\/p>\n<p><strong>2023 Seminar Three<br \/>\n<\/strong>The Perfect Red Blood Cell: An SC Dream Redefined<\/p>\n<p>This session was held live at our Annual National Convention in October 2023. The session was moderated by Kim Smith-Whitley, M.D., and featured panelists Vence Bonham, J.D., Tangela Roberts, Teonna Woolford and Andre Harris.<\/p>\n<p><strong><a href=\"https:\/\/scdaamasterclass.com\/live-event\">WATCH NOW<\/a><\/strong><\/p>\n<p><strong>2024 Seminar One<br \/>\n<\/strong>Global Implications of Gene Therapy: How You Can Prepare<br \/>\n<em>Presented in collaboration with the Global Alliance of Sickle Cell Disease Organizations<\/em><\/p>\n<p>With more countries offering gene therapy, sickle cell community members all around the world are wondering, \u201chow do I prepare myself or my loved ones for this treatment?\u201d Getting access to timely and accurate information can be a challenge. Together, the Sickle Cell Disease Association of America, Inc., (SCDAA) and Global Alliance of Sickle Cell Disease Organizations (GASCDO) have collaborated to bring experts from the clinical, warrior and caregiver communities together to provide up-to-date, relevant information to the global sickle cell community. Participants will learn what they need to know to make an informed decision about this potentially curative and life-changing therapy and have their questions answered.<\/p>\n<p><span style=\"color: #0000ff;\"><a href=\"https:\/\/www.youtube.com\/watch?v=0kzKMciebaw\" style=\"color: #0000ff;\"><b>WATCH NOW<\/b><\/a><\/span><\/p>\n<p><strong>2024 Seminar Two<br \/>\n<\/strong>Anemia Falciforme: La Experiencia Latina (Sickle Cell Disease: The Latino Experience)<br \/>\n<em>Masterclass En Espa\u00f1ol with English Translation<\/em><\/p>\n<p><span>Por primera vez tenenos una Clase Maestra en espa\u00f1ol (con traducci\u00f3n al ingl\u00e9s) para hablar de la &#8220;Anemia Falciforme: La experiencia latina.&#8221; \u00a1Explore opciones de tratamiento, descubra los recursos disponibles, gane conocimiento sobre historias personales y mucho m\u00e1s!<\/span><\/p>\n<p align=\"center\" style=\"text-align: left;\"><em>For the first time, we have a Masterclass en Espa\u00f1ol (with English translations) to talk about &#8220;Sickle Cell Disease: The Latino Experience.&#8221; Explore treatment options, discover available resources, gain insight into personal stories and more!\u00a0<\/em><\/p>\n<p align=\"center\" style=\"text-align: left;\"><strong><a href=\"https:\/\/scdaamasterclass.com\/live-event\">WATCH NOW<\/a><\/strong><\/p>\n","protected":false},"excerpt":{"rendered":"<p>In recognition of Sickle Cell Disease Association of America (SCDAA), Inc.\u2019s 50th anniversary, we have launched this limited, three-part speaker series, Masterclass on Sickle Cell Disease. Leading experts in sickle cell disease focus on novel concepts surrounding disease-modifying and curative therapies and their impact on those living with sickle cell disease. The goal is to [&hellip;]<\/p>\n","protected":false},"author":3,"featured_media":6530,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-6524","page","type-page","status-publish","has-post-thumbnail","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v24.0 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>SCD Masterclass - Sickle Cell Disease Association of America Inc.<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.sicklecelldisease.org\/scd-masterclass-on-the-cusp-of-a-cure\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"SCD Masterclass - Sickle Cell Disease Association of America Inc.\" \/>\n<meta property=\"og:description\" content=\"In recognition of Sickle Cell Disease Association of America (SCDAA), Inc.\u2019s 50th anniversary, we have launched this limited, three-part speaker series, Masterclass on Sickle Cell Disease. 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