{"id":6407,"date":"2023-03-15T18:50:41","date_gmt":"2023-03-15T18:50:41","guid":{"rendered":"https:\/\/www.sicklecelldisease.org\/?p=6407"},"modified":"2023-03-15T18:50:41","modified_gmt":"2023-03-15T18:50:41","slug":"scdaa-to-promote-clinical-trials","status":"publish","type":"post","link":"https:\/\/www.sicklecelldisease.org\/2023\/03\/15\/scdaa-to-promote-clinical-trials\/","title":{"rendered":"SCDAA to promote clinical trials"},"content":{"rendered":"<p>The Sickle Cell Disease Association of America, a national nonprofit membership organization that advocates for people affected by sickle cell, formed the Sickle Cell Disease C.A.R.E.S. Consortium, an initiative of pharmaceutical companies united to promote clinical trial participation and education.<\/p>\n<p>\u201cWe have an opportunity and a responsibility to change the perception of clinical trials and increase the participation of sickle cell patients in clinical trials,\u201d said Regina Hartfield, president and CEO of the Sickle Cell Disease Association of America. \u201cTogether, we will collectively leverage our resources to educate and encourage more trial participation while providing opportunities and therefore better options for the treatment of sickle cell disease.<\/p>\n<p>C.A.R.E.S., which stands for Collaboration of Advocates for Research, Education and Science, consists of members <a href=\"https:\/\/www.agios.com\/\">Agios<\/a>; <a href=\"https:\/\/beamtx.com\/\">Beam Therapeutics<\/a>; <a href=\"https:\/\/www.editasmedicine.com\/\">Editas Medicine<\/a>; Forma Therapeutics, a <a href=\"https:\/\/www.novonordisk.com\/\">Novo Nordisk Company<\/a>; <a href=\"https:\/\/hemanext.com\/\">Hemanext<\/a>; <a href=\"https:\/\/www.pfizer.com\/\">Pfizer<\/a>; <a href=\"https:\/\/www.sanofi.com\/en\/\">Sanofi<\/a> and <a href=\"https:\/\/www.vrtx.com\/\">Vertex Pharmaceuticals<\/a>.<\/p>\n<p>The Sickle Cell Disease C.A.R.E.S. Consortium will launch with an awareness campaign for the Sickle Cell Disease Association of America\u2019s clinical trial finder. Available on the association\u2019s <a href=\"https:\/\/sicklecelldisease.net\/scdaa-trial-finder\/\">website<\/a> and mobile app, the trial finder is a centralized site to help people with sickle cell disease, their families and caregivers find clinical trials.<\/p>\n<p>Clinical trials help pharmaceutical companies collect data about the effectiveness and safety of sickle cell disease treatments and can provide participants with new treatments before they become widely available. Participants can use the clinical trial finder to search for sickle cell disease-focused clinical trials by keyword, location, study type and phase, all listed in one place. The Sickle Cell Disease Association of America and Forma Therapeutics partnered to develop the trial finder in 2021.<\/p>\n<p>The Sickle Cell Disease C.A.R.E.S. Consortium\u2019s awareness campaign will use stories, videos, infographics, testimonials, public relations and marketing to spotlight the clinical trial finder as well as debunk myths about clinical research and spark conversations about trial participation.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>The Sickle Cell Disease Association of America, a national nonprofit membership organization that advocates for people affected by sickle cell, formed the Sickle Cell Disease C.A.R.E.S. Consortium, an initiative of pharmaceutical companies united to promote clinical trial participation and education. \u201cWe have an opportunity and a responsibility to change the perception of clinical trials and [&hellip;]<\/p>\n","protected":false},"author":3,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[2],"tags":[],"class_list":["post-6407","post","type-post","status-publish","format-standard","hentry","category-news"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v24.0 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>SCDAA to promote clinical trials - Sickle Cell Disease Association of America Inc.<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.sicklecelldisease.org\/2023\/03\/15\/scdaa-to-promote-clinical-trials\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"SCDAA to promote clinical trials - Sickle Cell Disease Association of America Inc.\" \/>\n<meta property=\"og:description\" content=\"The Sickle Cell Disease Association of America, a national nonprofit membership organization that advocates for people affected by sickle cell, formed the Sickle Cell Disease C.A.R.E.S. 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