{"id":6278,"date":"2023-02-06T21:05:46","date_gmt":"2023-02-06T21:05:46","guid":{"rendered":"https:\/\/www.sicklecelldisease.org\/?p=6278"},"modified":"2023-02-06T21:05:46","modified_gmt":"2023-02-06T21:05:46","slug":"sickle-cell-is-not-a-joke","status":"publish","type":"post","link":"https:\/\/www.sicklecelldisease.org\/2023\/02\/06\/sickle-cell-is-not-a-joke\/","title":{"rendered":"Sickle Cell is Not a Joke"},"content":{"rendered":"<p><span>The Sickle Cell Disease Association of America, Inc., joins the <\/span><span><a class=\"x1i10hfl xjbqb8w x6umtig x1b1mbwd xaqea5y xav7gou x9f619 x1ypdohk xt0psk2 xe8uvvx xdj266r x11i5rnm xat24cr x1mh8g0r xexx8yu x4uap5 x18d9i69 xkhd6sd x16tdsg8 x1hl2dhg xggy1nq x1a2a7pz xt0b8zv x1qq9wsj xo1l8bm\" href=\"https:\/\/www.facebook.com\/fscdr?__cft__[0]=AZWjKPoKu4Knzk2RN-DB9dTAQ-A3efx7tuCrrAltUrc_xk-VfJx2sfndZBFWT0O9uKwV9OVGh5OUU-JQTpIn9T1BgWE089MjT-js2PR2VJLrrC6cFuc3lZr0R6jvG1O3cGLs8OlA5DJwtYgNUQGPOgC5O53kB05CwP2FhztAFQp7wylJ1htMTPilSDCH8M8bisiF1JQht0DRXWZ-m_o5MADe&amp;__tn__=-]K-R\" role=\"link\" tabindex=\"0\"><span class=\"xt0psk2\">Foundation For Sickle Cell Disease Research<\/span><\/a><\/span><span> (FSCDR) in condemning the use of sickle cell disease (SCD) as a punchline on the <\/span><span><a class=\"x1i10hfl xjbqb8w x6umtig x1b1mbwd xaqea5y xav7gou x9f619 x1ypdohk xt0psk2 xe8uvvx xdj266r x11i5rnm xat24cr x1mh8g0r xexx8yu x4uap5 x18d9i69 xkhd6sd x16tdsg8 x1hl2dhg xggy1nq x1a2a7pz xt0b8zv x1qq9wsj xo1l8bm\" href=\"https:\/\/www.facebook.com\/HBOMax\/?__cft__[0]=AZWjKPoKu4Knzk2RN-DB9dTAQ-A3efx7tuCrrAltUrc_xk-VfJx2sfndZBFWT0O9uKwV9OVGh5OUU-JQTpIn9T1BgWE089MjT-js2PR2VJLrrC6cFuc3lZr0R6jvG1O3cGLs8OlA5DJwtYgNUQGPOgC5O53kB05CwP2FhztAFQp7wylJ1htMTPilSDCH8M8bisiF1JQht0DRXWZ-m_o5MADe&amp;__tn__=kK-R\" role=\"link\" tabindex=\"0\"><span class=\"xt0psk2\">HBO Max<\/span><\/a><\/span><span> show Velma. For the over 100,000 Americans impacted by sickle cell and their families, this disease is anything but a laughing matter. Stereotypes and misinformation reinforced by media clips such as this have real-life consequences. Sickle cell patients struggle to be taken <\/span><span><a tabindex=\"-1\"><\/a><\/span><span>seriously and receive proper care, even when they present with life-threatening symptoms in the emergency room. As we work to change the perception of sickle cell and increase education surrounding this condition, insensitive and inappropriate jokes like these work against progress and contribute to the spread of misinformation. We must do better and encourage people to treat rare diseases with the respect they are due. <\/span><\/p>\n<p><strong><a href=\"https:\/\/www.facebook.com\/fscdr\">Click here to read the full statement from FSCDR.\u00a0<\/a><\/strong><\/p>\n<p><span><a class=\"x1i10hfl xjbqb8w x6umtig x1b1mbwd xaqea5y xav7gou x9f619 x1ypdohk xt0psk2 xe8uvvx xdj266r x11i5rnm xat24cr x1mh8g0r xexx8yu x4uap5 x18d9i69 xkhd6sd x16tdsg8 x1hl2dhg xggy1nq x1a2a7pz xt0b8zv x1qq9wsj xo1l8bm\" href=\"https:\/\/www.facebook.com\/hashtag\/sicklecellisnotajoke?__eep__=6&amp;__cft__[0]=AZWjKPoKu4Knzk2RN-DB9dTAQ-A3efx7tuCrrAltUrc_xk-VfJx2sfndZBFWT0O9uKwV9OVGh5OUU-JQTpIn9T1BgWE089MjT-js2PR2VJLrrC6cFuc3lZr0R6jvG1O3cGLs8OlA5DJwtYgNUQGPOgC5O53kB05CwP2FhztAFQp7wylJ1htMTPilSDCH8M8bisiF1JQht0DRXWZ-m_o5MADe&amp;__tn__=*NK-R\" role=\"link\" tabindex=\"0\">#SickleCellIsNotAJoke<\/a><\/span><\/p>\n","protected":false},"excerpt":{"rendered":"<p>The Sickle Cell Disease Association of America, Inc., joins the Foundation For Sickle Cell Disease Research (FSCDR) in condemning the use of sickle cell disease (SCD) as a punchline on the HBO Max show Velma. For the over 100,000 Americans impacted by sickle cell and their families, this disease is anything but a laughing matter. [&hellip;]<\/p>\n","protected":false},"author":3,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":["post-6278","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v24.0 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Sickle Cell is Not a Joke - Sickle Cell Disease Association of America Inc.<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.sicklecelldisease.org\/2023\/02\/06\/sickle-cell-is-not-a-joke\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Sickle Cell is Not a Joke - Sickle Cell Disease Association of America Inc.\" \/>\n<meta property=\"og:description\" content=\"The Sickle Cell Disease Association of America, Inc., joins the Foundation For Sickle Cell Disease Research (FSCDR) in condemning the use of sickle cell disease (SCD) as a punchline on the HBO Max show Velma. For the over 100,000 Americans impacted by sickle cell and their families, this disease is anything but a laughing matter. 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