{"id":5990,"date":"2023-03-03T20:44:30","date_gmt":"2023-03-03T20:44:30","guid":{"rendered":"https:\/\/www.sicklecelldisease.org\/?page_id=5990"},"modified":"2024-12-03T22:01:01","modified_gmt":"2024-12-03T22:01:01","slug":"scdcares","status":"publish","type":"page","link":"https:\/\/www.sicklecelldisease.org\/scdcares\/","title":{"rendered":"SCD C.A.R.E.S. Consortium"},"content":{"rendered":"<h3>Welcome to the SCD C.A.R.E.S. (Collaboration of Advocates for Research, Education and Science) Consortium!<\/h3>\n<p>The mission of this initiative is to raise awareness about the importance of clinical trials and why it&#8217;s beneficial for sickle cell warriors to participate in them. The Sickle Cell Disease Association of America, along with our strategic partners, joined together to educate and encourage more trial participation while providing opportunities and therefore better options for the treatment of sickle cell disease. Click on the logos below to learn more about our partners.<\/p>\n<table width=\"800\">\n<tbody>\n<tr>\n<td width=\"200\"><a href=\"https:\/\/www.sicklecelldisease.org\/scd-cares-afimmune\/\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2023\/06\/Afimmune-Logo-300x212.jpg\" alt=\"\" width=\"300\" height=\"212\" class=\"alignnone wp-image-6556 size-medium\" srcset=\"https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2023\/06\/Afimmune-Logo-300x212.jpg 300w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2023\/06\/Afimmune-Logo.jpg 368w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/a><\/td>\n<td width=\"200\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2024\/07\/Agios_2021_Logo.jpg\" alt=\"\" width=\"1252\" height=\"225\" class=\"alignnone wp-image-7191 size-full\" srcset=\"https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2024\/07\/Agios_2021_Logo.jpg 1252w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2024\/07\/Agios_2021_Logo-300x54.jpg 300w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2024\/07\/Agios_2021_Logo-1024x184.jpg 1024w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2024\/07\/Agios_2021_Logo-768x138.jpg 768w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2024\/07\/Agios_2021_Logo-400x72.jpg 400w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2024\/07\/Agios_2021_Logo-600x108.jpg 600w\" sizes=\"auto, (max-width: 1252px) 100vw, 1252px\" \/><\/td>\n<td width=\"200\"><a href=\"https:\/\/beamtx.com\/\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2022\/08\/BeamLogo_Color_RGB-1.jpg\" alt=\"\" width=\"1288\" height=\"730\" class=\"alignnone size-full wp-image-5996\" srcset=\"https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2022\/08\/BeamLogo_Color_RGB-1.jpg 1288w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2022\/08\/BeamLogo_Color_RGB-1-300x170.jpg 300w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2022\/08\/BeamLogo_Color_RGB-1-1024x580.jpg 1024w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2022\/08\/BeamLogo_Color_RGB-1-768x435.jpg 768w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2022\/08\/BeamLogo_Color_RGB-1-400x227.jpg 400w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2022\/08\/BeamLogo_Color_RGB-1-600x340.jpg 600w\" sizes=\"auto, (max-width: 1288px) 100vw, 1288px\" \/><\/a><\/td>\n<td width=\"200\"><a href=\"https:\/\/www.editasmedicine.com\/\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2022\/09\/Editas-Logo-Large-3-300x124.jpg\" alt=\"\" width=\"300\" height=\"124\" class=\"alignnone wp-image-6100 size-medium\" srcset=\"https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2022\/09\/Editas-Logo-Large-3-300x124.jpg 300w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2022\/09\/Editas-Logo-Large-3-1024x424.jpg 1024w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2022\/09\/Editas-Logo-Large-3-768x318.jpg 768w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2022\/09\/Editas-Logo-Large-3-400x166.jpg 400w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2022\/09\/Editas-Logo-Large-3-600x249.jpg 600w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2022\/09\/Editas-Logo-Large-3.jpg 1212w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/a><\/td>\n<td width=\"200\"><a href=\"https:\/\/www.sicklecelldisease.org\/fulcrum-therapeutics\/\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2022\/10\/Fulcrum-Logo_Primary_Full-Color_RGB_Hi-res-5000-002_1.png\" alt=\"\" width=\"2855\" height=\"700\" class=\"alignnone size-full wp-image-6140\" srcset=\"https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2022\/10\/Fulcrum-Logo_Primary_Full-Color_RGB_Hi-res-5000-002_1.png 2855w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2022\/10\/Fulcrum-Logo_Primary_Full-Color_RGB_Hi-res-5000-002_1-300x74.png 300w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2022\/10\/Fulcrum-Logo_Primary_Full-Color_RGB_Hi-res-5000-002_1-1024x251.png 1024w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2022\/10\/Fulcrum-Logo_Primary_Full-Color_RGB_Hi-res-5000-002_1-768x188.png 768w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2022\/10\/Fulcrum-Logo_Primary_Full-Color_RGB_Hi-res-5000-002_1-1536x377.png 1536w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2022\/10\/Fulcrum-Logo_Primary_Full-Color_RGB_Hi-res-5000-002_1-2048x502.png 2048w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2022\/10\/Fulcrum-Logo_Primary_Full-Color_RGB_Hi-res-5000-002_1-400x98.png 400w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2022\/10\/Fulcrum-Logo_Primary_Full-Color_RGB_Hi-res-5000-002_1-600x147.png 600w\" sizes=\"auto, (max-width: 2855px) 100vw, 2855px\" \/><\/a><a href=\"https:\/\/www.sicklecelldisease.org\/scdcares-hemanext\/\"><strong><u><\/u><\/strong><\/a><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<table width=\"800\">\n<tbody>\n<tr>\n<td width=\"100\"><a href=\"https:\/\/www.sicklecelldisease.org\/scdcares-hemanext\/\"><strong><u><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2022\/11\/Hemanext_CMYK-1.png\" alt=\"\" width=\"1307\" height=\"219\" class=\"alignnone wp-image-6196 size-full\" srcset=\"https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2022\/11\/Hemanext_CMYK-1.png 1307w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2022\/11\/Hemanext_CMYK-1-300x50.png 300w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2022\/11\/Hemanext_CMYK-1-1024x172.png 1024w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2022\/11\/Hemanext_CMYK-1-768x129.png 768w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2022\/11\/Hemanext_CMYK-1-400x67.png 400w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2022\/11\/Hemanext_CMYK-1-600x101.png 600w\" sizes=\"auto, (max-width: 1307px) 100vw, 1307px\" \/><\/u><\/strong><\/a><\/td>\n<td width=\"100\"><a href=\"https:\/\/www.sicklecelldisease.org\/scdcares-novonordisk\/\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2023\/05\/nn_logo_rgb_blue_large_new-300x214.jpg\" alt=\"\" width=\"300\" height=\"214\" class=\"alignnone wp-image-6478 size-medium\" srcset=\"https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2023\/05\/nn_logo_rgb_blue_large_new-300x214.jpg 300w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2023\/05\/nn_logo_rgb_blue_large_new-1024x730.jpg 1024w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2023\/05\/nn_logo_rgb_blue_large_new-768x547.jpg 768w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2023\/05\/nn_logo_rgb_blue_large_new-1536x1094.jpg 1536w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2023\/05\/nn_logo_rgb_blue_large_new-2048x1459.jpg 2048w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2023\/05\/nn_logo_rgb_blue_large_new-400x285.jpg 400w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2023\/05\/nn_logo_rgb_blue_large_new-600x428.jpg 600w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/a><\/td>\n<td width=\"100\"><a href=\"https:\/\/www.sicklecelldisease.org\/scd-cares-pfizer\/\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2022\/09\/Pfizer-Logo-Color-RGB-1.png\" alt=\"\" width=\"6275\" height=\"2590\" class=\"alignnone size-full wp-image-6129\" srcset=\"https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2022\/09\/Pfizer-Logo-Color-RGB-1.png 6275w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2022\/09\/Pfizer-Logo-Color-RGB-1-300x124.png 300w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2022\/09\/Pfizer-Logo-Color-RGB-1-1024x423.png 1024w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2022\/09\/Pfizer-Logo-Color-RGB-1-768x317.png 768w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2022\/09\/Pfizer-Logo-Color-RGB-1-1536x634.png 1536w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2022\/09\/Pfizer-Logo-Color-RGB-1-2048x845.png 2048w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2022\/09\/Pfizer-Logo-Color-RGB-1-400x165.png 400w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2022\/09\/Pfizer-Logo-Color-RGB-1-600x248.png 600w\" sizes=\"auto, (max-width: 6275px) 100vw, 6275px\" \/><\/a><\/td>\n<td width=\"100\"><a href=\"https:\/\/www.sanofi.com\/en\/\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2021\/05\/USE-THIS-ONE-Sanofi-Genzyme-RVB-Colors-stacked-2018-002.png\" alt=\"\" width=\"904\" height=\"234\" class=\"alignnone wp-image-5107 size-full\" srcset=\"https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2021\/05\/USE-THIS-ONE-Sanofi-Genzyme-RVB-Colors-stacked-2018-002.png 904w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2021\/05\/USE-THIS-ONE-Sanofi-Genzyme-RVB-Colors-stacked-2018-002-600x155.png 600w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2021\/05\/USE-THIS-ONE-Sanofi-Genzyme-RVB-Colors-stacked-2018-002-300x78.png 300w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2021\/05\/USE-THIS-ONE-Sanofi-Genzyme-RVB-Colors-stacked-2018-002-768x199.png 768w\" sizes=\"auto, (max-width: 904px) 100vw, 904px\" \/><\/a><\/td>\n<td width=\"100\"><a href=\"https:\/\/www.vrtx.com\/\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2022\/09\/VertexLogoSOP_R_colorsmallRGB.jpg\" alt=\"\" width=\"984\" height=\"651\" class=\"alignnone wp-image-6111 size-full\" srcset=\"https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2022\/09\/VertexLogoSOP_R_colorsmallRGB.jpg 984w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2022\/09\/VertexLogoSOP_R_colorsmallRGB-300x198.jpg 300w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2022\/09\/VertexLogoSOP_R_colorsmallRGB-768x508.jpg 768w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2022\/09\/VertexLogoSOP_R_colorsmallRGB-400x265.jpg 400w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2022\/09\/VertexLogoSOP_R_colorsmallRGB-600x397.jpg 600w\" sizes=\"auto, (max-width: 984px) 100vw, 984px\" \/><\/a><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<h3><\/h3>\n<h3>Olivia&#8217;s Journey<\/h3>\n<p><a href=\"https:\/\/drive.google.com\/file\/d\/1dHujw3BlVqON3GkifXhnVWxV0eCMGlhd\/view?usp=sharing\"><strong>NEW: Learn more about clinical trials by joining Olivia on her journey! Click here to download a printable file.<\/strong><\/a><\/p>\n<p><strong><a href=\"https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2024\/04\/H-4949-Olivia-Journey-Converted-to-Brochure_HI.pdf\">Click here to download the brochure.<\/a><\/strong><\/p>\n<p><a href=\"https:\/\/drive.google.com\/file\/d\/1dHujw3BlVqON3GkifXhnVWxV0eCMGlhd\/view?usp=sharing\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2024\/02\/H-3734-SCD-Cares-Consortium-Journey-Flier-rev5_HI-scaled.jpg\" alt=\"\" width=\"2560\" height=\"1657\" class=\"alignnone wp-image-6975 size-full\" srcset=\"https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2024\/02\/H-3734-SCD-Cares-Consortium-Journey-Flier-rev5_HI-scaled.jpg 2560w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2024\/02\/H-3734-SCD-Cares-Consortium-Journey-Flier-rev5_HI-300x194.jpg 300w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2024\/02\/H-3734-SCD-Cares-Consortium-Journey-Flier-rev5_HI-1024x663.jpg 1024w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2024\/02\/H-3734-SCD-Cares-Consortium-Journey-Flier-rev5_HI-768x497.jpg 768w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2024\/02\/H-3734-SCD-Cares-Consortium-Journey-Flier-rev5_HI-1536x994.jpg 1536w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2024\/02\/H-3734-SCD-Cares-Consortium-Journey-Flier-rev5_HI-2048x1325.jpg 2048w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2024\/02\/H-3734-SCD-Cares-Consortium-Journey-Flier-rev5_HI-400x259.jpg 400w, https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2024\/02\/H-3734-SCD-Cares-Consortium-Journey-Flier-rev5_HI-600x388.jpg 600w\" sizes=\"auto, (max-width: 2560px) 100vw, 2560px\" \/><\/a><\/p>\n<h3>The Clinical Trial Finder<\/h3>\n<p><span>Created in partnership with Forma Therapeutics. our Clinical Trial Finder is a centralized, simple-to-navigate resource that helps people with sickle cell disease, their families and caregivers find clinical trials. Clinical trials help pharmaceutical companies and researchers develop new sickle cell treatments. Your participation helps guide these breakthroughs and also gives you access to these new treatments before they are available to the public. <\/span><span>Use the tool below to search for trials by keyword, location, study type and phase \u2013 now listed in one place. <strong><a href=\"https:\/\/www.sicklecelldisease.org\/clinical-trial-finder\/\">Visit the Clinical Trial Finder today.<\/a><\/strong><\/span><\/p>\n<h3>Clinical Trial FAQs<\/h3>\n<p><span style=\"color: #ff0000;\"><strong>What is a clinical trial?<\/strong><\/span><\/p>\n<p><span>Clinical trials are used to test the safety and effectiveness of drugs and devices. Usually, they are sponsored by pharmaceutical companies and conducted by research teams that include doctors and other medical professionals.<\/span><\/p>\n<p><span style=\"color: #ff0000;\"><strong>How is a clinical trial conducted?\u00a0<\/strong><\/span><\/p>\n<p>Trials are typically conducted in four phases:<\/p>\n<ul>\n<li>During phase one, healthy people are given the medication to test if the ingestion of the pill or treatment has any adverse side effects.<\/li>\n<li>Phases two and three dive deeper into the safety, effectiveness and dosage of the medication. After these stages, the FDA will approve the drug or device.<\/li>\n<li>Phase four examines new uses for previously approved treatments.<\/li>\n<\/ul>\n<p><span style=\"color: #ff0000;\"><strong>How are clinical trials regulated and approved?<\/strong><\/span><\/p>\n<p><span>All the phases in clinical trials are governed by strict protocols and overseen by many regulatory bodies, from the Food and Drug Administration (FDA) to small Institutional Review Boards (IRBs). IRBs are a group of independent medical experts, ethicists and lay people. Researchers report periodically to the IRB to share updates on the trial including contact with patients, the tests conducted and if any serious side effects have been reported.\u202fIRBs are accredited by the Association for the Accreditation of Human Research Protection Programs (AAHRPP). <a href=\"https:\/\/www.policymed.com\/2010\/05\/the-importance-of-clinical-trials.html\">Source.<\/a><\/span><\/p>\n<p><span style=\"color: #ff0000;\"><strong>What are the benefits to participating in a clinical trial?\u00a0<\/strong><\/span><\/p>\n<p>Clinical trials allow participants to try new medications before they are widely available to the public. Participants play an important role in developing these therapies and widening our understanding of how to treat SCD.<\/p>\n<p><span style=\"color: #ff0000;\"><strong>How do I find a clinical trial near me?\u00a0<\/strong><\/span><\/p>\n<p>Visit our <strong><a href=\"https:\/\/www.sicklecelldisease.org\/clinical-trial-finder\/\">Clinical Trial Finder<\/a><\/strong>, created in partnership with Forma Therapeutics.<\/p>\n<h3>News<\/h3>\n<ul>\n<li><strong><a href=\"https:\/\/www.sicklecelldisease.org\/2023\/03\/15\/scdaa-to-promote-clinical-trials\/\">SCDAA to promote clinical trials<\/a><\/strong><\/li>\n<\/ul>\n","protected":false},"excerpt":{"rendered":"<p>Welcome to the SCD C.A.R.E.S. (Collaboration of Advocates for Research, Education and Science) Consortium! The mission of this initiative is to raise awareness about the importance of clinical trials and why it&#8217;s beneficial for sickle cell warriors to participate in them. The Sickle Cell Disease Association of America, along with our strategic partners, joined together [&hellip;]<\/p>\n","protected":false},"author":3,"featured_media":2346,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-5990","page","type-page","status-publish","has-post-thumbnail","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v24.0 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>SCD C.A.R.E.S. Consortium - Sickle Cell Disease Association of America Inc.<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.sicklecelldisease.org\/scdcares\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"SCD C.A.R.E.S. Consortium - Sickle Cell Disease Association of America Inc.\" \/>\n<meta property=\"og:description\" content=\"Welcome to the SCD C.A.R.E.S. (Collaboration of Advocates for Research, Education and Science) Consortium! The mission of this initiative is to raise awareness about the importance of clinical trials and why it&#8217;s beneficial for sickle cell warriors to participate in them. 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