{"id":5099,"date":"2021-05-07T20:36:31","date_gmt":"2021-05-07T20:36:31","guid":{"rendered":"https:\/\/www.sicklecelldisease.org\/?page_id=5099"},"modified":"2024-10-17T21:10:40","modified_gmt":"2024-10-17T21:10:40","slug":"advocacy-resources","status":"publish","type":"page","link":"https:\/\/www.sicklecelldisease.org\/advocacy-resources\/","title":{"rendered":"Advocacy Resources"},"content":{"rendered":"<p>Whether you&#8217;re a patient, a caregiver, a friend, a family member or a provider, sickle cell advocacy is important as we work toward a universal cure. Please visit the links below to find resources to help you advocate for key legislative issues that are important to individuals living with SCD and their families.<\/p>\n<ul>\n<li><a href=\"https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2024\/10\/H-5565-Advocacy-Update_HI.pdf\">SCDAA&#8217;s October 2024 Legislative Update<\/a><\/li>\n<li><a href=\"https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2024\/06\/H-5187-June-Advocacy-Newsletter.pdf\">SCDAA&#8217;s June 2024 Legislative Update<\/a><\/li>\n<li><a href=\"https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2024\/03\/H-4986-March-Legislative-Briefing_2url.pdf\">SCDAA&#8217;s March 2024 Legislative Update<\/a><\/li>\n<li><a href=\"https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2022\/04\/2022-FY23-SCD-Legislative-One-Pager-1-2-1.pdf\">SCDAA&#8217;s FY 2023 Federal Legislative Priorities<\/a>: SCDAA advocacy priorities for FY 2023<\/li>\n<li><a href=\"https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2022\/04\/SCDAA-Opioid-Guidelines.pdf\">SCDAA&#8217;s comments on the CDC&#8217;s opioid guidelines<\/a>: Urging the CDC to go further to support the sickle cell community&#8217;s needs for pain management<\/li>\n<li><a href=\"https:\/\/www.ncbi.nlm.nih.gov\/pmc\/articles\/PMC3650026\/\">Neurobiological Mechanisms of Pain in Sickle Cell Disease<\/a>: A National Institutes of Health article on the physiology of pain resulting from SCD<\/li>\n<li><a href=\"https:\/\/www.nationalacademies.org\/our-work\/addressing-sickle-cell-disease-a-strategic-plan-and-blueprint-for-action\">Addressing Sickle Cell Disease:<\/a><a href=\"https:\/\/www.nationalacademies.org\/our-work\/addressing-sickle-cell-disease-a-strategic-plan-and-blueprint-for-action\"> A Strategic Plan and Blueprint for Action<\/a>: A Report by the National Academies of Sciences, Engineering and Medicine<\/li>\n<li><a href=\"https:\/\/www.nhlbi.nih.gov\/sites\/default\/files\/media\/docs\/sickle-cell-disease-report%20020816_0.pdf\"><span>Evidence-Based Management of Sickle Cell Disease<\/span><\/a>: A Report by t<span>he National Heart, Lung, and Blood Institute at the National Institutes of Health<\/span><\/li>\n<li><a href=\"https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2021\/06\/SCD-Hearing-Letter-to-Congress.pdf\">Letter to Congress from the SCD community<\/a>: Urging leadership to mandate an annual hearing on the 2020 NASEM report on SCD.<\/li>\n<\/ul>\n","protected":false},"excerpt":{"rendered":"<p>Whether you&#8217;re a patient, a caregiver, a friend, a family member or a provider, sickle cell advocacy is important as we work toward a universal cure. Please visit the links below to find resources to help you advocate for key legislative issues that are important to individuals living with SCD and their families. SCDAA&#8217;s October [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":2364,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-5099","page","type-page","status-publish","has-post-thumbnail","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v24.0 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Advocacy Resources - Sickle Cell Disease Association of America Inc.<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.sicklecelldisease.org\/advocacy-resources\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Advocacy Resources - Sickle Cell Disease Association of America Inc.\" \/>\n<meta property=\"og:description\" content=\"Whether you&#8217;re a patient, a caregiver, a friend, a family member or a provider, sickle cell advocacy is important as we work toward a universal cure. 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