{"id":5056,"date":"2021-04-01T16:31:44","date_gmt":"2021-04-01T16:31:44","guid":{"rendered":"https:\/\/www.sicklecelldisease.org\/?p=5056"},"modified":"2021-04-01T16:31:44","modified_gmt":"2021-04-01T16:31:44","slug":"sickle-cell-disease-association-of-america-inc-launches-new-educational-materials-to-support-childrens-blood-transfusion","status":"publish","type":"post","link":"https:\/\/www.sicklecelldisease.org\/2021\/04\/01\/sickle-cell-disease-association-of-america-inc-launches-new-educational-materials-to-support-childrens-blood-transfusion\/","title":{"rendered":"SCDAA Launches New Educational Materials to Support Children\u2019s Blood Transfusion"},"content":{"rendered":"

Sickle Cell Disease Association of America, Inc. (SCDAA) and Hemanext Inc., a privately held medical technology company dedicated to improving the quality, safety, efficacy and cost of red blood cell (RBC) transfusion therapy, today announced the launch of new educational material to help SCDAA deliver on its mission and meet its goals. Hemanext has sponsored the creation of a set of educational materials, one for a child and one for a caregiver, to educate on blood transfusions. This collaboration is part of SCDAA and Hemanext\u2019s partnership, which began in 2020.
\nSickle cell disease (SCD) affects 100,000 individuals in the United States, disproportionately affecting African Americans. SCD occurs in about one in 365 Black or African American births.1<\/sup>\u00a0The genetic disease is associated with serious, life-threatening complications, including stroke and acute chest syndrome (ACS).2,3<\/sup>\u00a0<\/span>As result, people with SCD often require chronic red blood cell transfusions,2<\/sup>\u00a0which for some patients is a life-saving therapy.3<\/sup>
\nChildren and parents may experience anxiety because they are unaware of the process to receive a blood transfusion. The goal of these two educational materials is to inform and empower patients and their caregivers about this important therapy. SCDAA will make these the resources available to the sickle cell community.
\n\u201cDuring a review of our currently available educational resources, we identified the opportunity to help young sickle cell warriors prepare for their transfusions,\u201d said SCDAA President and CEO Beverley Francis-Gibson. \u201cWe appreciate that Hemanext has stepped up to help us fill this information need and make a difference breaking the sickle cycle.\u201d
\n\u201cIt is a privilege to continue our partnership with Ms. Francis-Gibson and her dedicated team at SCDAA, the premier sickle cell organization,\u201d said Hemanext President and CEO Martin Cannon. \u201cWe are committed to helping SCDAA achieve its mission and enhance the lives of members of the sickle cell community.\u201d
\n\u201cAs we enter the second year of our alliance, we will continue to look for ways to support SCDAA, patients, and families during these difficult times,\u201d said Alex Marichal, VP, Marketing, Hemanext.\u00a0<\/strong>
\nABOUT SCDAA<\/strong>
\nSCDAA\u2019s mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.\u00a0<\/span>Visit www.sicklecelldisease.org<\/a>.
\nABOUT HEMANEXT<\/strong>
\nHemanext\u2019s mission is to help patients enjoy healthier lives through safer transfusions. Hemanext\u2019s technology is a processing and storage system that is designed to remove the fuel for oxidative damage to red blood cells. Hemanext is focused on supporting clinicians and healthcare practitioners who prescribe life-saving RBC transfusions to their patients. Visit\u00a0<\/span>Hemanext.com<\/a>\u00a0<\/span>to learn more.<\/p>\n

    \n
  1. Data & Statistics on Sickle Cell Disease. Centers for Disease Control and Prevention.\u00a0<\/span>https:\/\/www.cdc.gov\/ncbddd\/sicklecell\/data.html<\/a>. Accessed March 19, 2021.<\/li>\n
  2. Understanding Sickle Cell Disease. American Society of Hematology, 2019. Available at https:\/\/www.hematology.org\/education\/clinicians\/guidelines-and-quality-care\/clinical-practice-guidelines\/sickle-cell-disease-guidelines. Accessed March 23, 2021.<\/li>\n
  3. Chou ST, Fasano RM. Management of Patients with Sickle Cell Disease Using Transfusion Therapy: Guidelines and Complications. Hematology\/oncology Clinics of North America. 2016 Jun;30(3):591-608. DOI: 10.1016\/j.hoc.2016.01.011.<\/li>\n<\/ol>\n","protected":false},"excerpt":{"rendered":"

    Sickle Cell Disease Association of America, Inc. (SCDAA) and Hemanext Inc., a privately held medical technology company dedicated to improving the quality, safety, efficacy and cost of red blood cell (RBC) transfusion therapy, today announced the launch of new educational material to help SCDAA deliver on its mission and meet its goals. Hemanext has sponsored […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[2],"tags":[],"class_list":["post-5056","post","type-post","status-publish","format-standard","hentry","category-news"],"yoast_head":"\nSCDAA Launches New Educational Materials to Support Children\u2019s Blood Transfusion - Sickle Cell Disease Association of America Inc.<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.sicklecelldisease.org\/2021\/04\/01\/sickle-cell-disease-association-of-america-inc-launches-new-educational-materials-to-support-childrens-blood-transfusion\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"SCDAA Launches New Educational Materials to Support Children\u2019s Blood Transfusion - Sickle Cell Disease Association of America Inc.\" \/>\n<meta property=\"og:description\" content=\"Sickle Cell Disease Association of America, Inc. (SCDAA) and Hemanext Inc., a privately held medical technology company dedicated to improving the quality, safety, efficacy and cost of red blood cell (RBC) transfusion therapy, today announced the launch of new educational material to help SCDAA deliver on its mission and meet its goals. 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