{"id":408,"date":"2018-07-09T14:29:57","date_gmt":"2018-07-09T20:29:57","guid":{"rendered":"https:\/\/scda.dojiggyengage.com\/?page_id=408"},"modified":"2023-11-02T19:36:53","modified_gmt":"2023-11-02T19:36:53","slug":"news","status":"publish","type":"page","link":"https:\/\/www.sicklecelldisease.org\/news\/","title":{"rendered":"Newsroom"},"content":{"rendered":"

Sickle Cell Disease Association of America, Inc. (SCDAA) is the leader in promoting and advancing initiatives focused on people affected by sickle cell conditions worldwide.<\/span> For 50 years, SCDAA and its 50-plus member organizations have demonstrated how community-based organizations can work as partners with medical facilities and local and state government agencies to pursue national health care objectives. <\/span> To be added to SCDAA’s press release distribution list, contact Emma Day at <\/span>eday@sicklecelldisease.org.<\/a><\/p>\n<\/div>\n

\n

FDA advisers see no roadblocks for gene-editing treatment for sickle cell disease<\/span><\/a><\/h2>\n

\u2013 NPR (October 31, 2023)<\/p>\n<\/div>\n

\n

Opinion: A Brutal Disease May Soon Be Transformed<\/span><\/a><\/h2>\n

\u2013 The New York Times (October 30, 2023)<\/p>\n<\/div>\n

\n

For people with sickle cell disease, ERs can mean life-threatening waits<\/span><\/a><\/h2>\n

\u2013 NBC News (October 15, 2023)<\/p>\n<\/div>\n

\n

Regina Hartfield of the SCDAA<\/span><\/a><\/h2>\n

\u2013 Cheat Codes: A Sickle Cell Podcast (September 19, 2023)<\/p>\n<\/div>\n

\n

Shining a Light on Sickle Cell Awareness with Regina Hartfield<\/span><\/a><\/h2>\n

\u2013 Thrivin’ In Color Podcast (September 15, 2023)<\/p>\n<\/div>\n

\n

What it’s like to have sickle cell disease: ‘It takes a tribe to sustain a warrior’<\/span><\/a><\/h2>\n

\u2013 GoodRx Health (September 1, 2023)<\/p>\n<\/div>\n

\n

Why we need more Black blood donors to treat sickle cell anemia<\/span><\/a><\/h2>\n

\u2013 CNN Health (June 27, 2023)<\/p>\n<\/div>\n

\n

Community care is key in treating sickle cell disease<\/span><\/a><\/h2>\n

\u2013 Delaware Public Radio (June 19, 2023)<\/p>\n<\/div>\n

\n

SCDAA expands access to clinical trial participation<\/span><\/a><\/h2>\n

\u2013 The Washington Informer (April 5, 2023)<\/p>\n<\/div>\n

\n

Sickle Cell Cure Brings Mix of Anxiety and Hope<\/span><\/a><\/h2>\n

\u2013 The New York Times (January 17, 2023)<\/p>\n<\/div>\n

\n

For patients with sickle cell disease, fertility care is about reproductive justice<\/span><\/a><\/h2>\n

\u2013 NPR (December 5, 2022)<\/p>\n<\/div>\n

\n

Opinion: Sickle Cell Disease fight needs passage of federal bills<\/span><\/a><\/h2>\n

\u2013 Mercury News (November 22, 2022)<\/p>\n<\/div>\n

\n

Case 6: Antoinette<\/span><\/a><\/h2>\n

\u2013 Symptomatic Podcast (November 21, 2022)<\/p>\n<\/div>\n

\n

Researchers are trialing lab-grown blood transfusions: What to know<\/span><\/a><\/h2>\n

\u2013 Medical News Today (November 11, 2022)<\/p>\n<\/div>\n

\n

Prioritizing Sickle Cell Disease<\/span><\/a><\/h2>\n

\u2013 American Academy of Pediatrics (September 20, 2022)<\/p>\n<\/div>\n

\n

Preventing sickle cell anemia complications in children<\/span><\/a><\/h2>\n

\u2013 Centers for Disease Control and Prevention Vital Signs (September 20, 2022)<\/p>\n<\/div>\n

\n

Sickle Cell Disease and Social Security<\/span><\/a><\/h2>\n

\u2013 Social Security Matters (September 15, 2022)<\/p>\n<\/div>\n

\n

New treatments are offering hope to sickle cell disease patients<\/span><\/a><\/h2>\n

\u2013 WAMU (August 16, 2022)<\/p>\n<\/div>\n

\n

Regina Hartfield: NORD recognizes SCDAA for leadership<\/span><\/a><\/h2>\n

\u2013 HCP Live (May 14, 2022)<\/p>\n<\/div>\n

\n

<\/a>Sickle Cell Disease Association of America arrives at 50th anniversary<\/a><\/span><\/h2>\n

\u2013 The Baltimore Sun (February 8, 2022)<\/p>\n<\/div>\n

\n

How do you find a clinical trial?\u00a0<\/span><\/a><\/h2>\n

\u2013 CSL Behring (January 25, 2022)<\/p>\n<\/div>\n

\n

Edward Ivy, MD, MPH: A Comprehensive Perspective on Sickle Cell Disease<\/span><\/a><\/h2>\n

\u2013 HCP Live (January 18, 2022)<\/p>\n<\/div>\n

\n

Regina Hartfield is now the president of SCDAA<\/span><\/a><\/h2>\n

\u2013 HCP Live (January 14, 2022)<\/p>\n<\/div>\n

\n

Q&A with new CEO of the SCDAA, Regina Hartfield<\/span><\/a><\/h2>\n

\u2013 Sickle Cell Disease News (December 28, 2021)<\/p>\n<\/div>\n

\n

Gene therapy may help cure sickle cell disease, study says<\/a>\u00a0<\/span><\/h2>\n

\u2013 HealthDay News (December 14, 2021)<\/p>\n<\/div>\n

\n

Sickle Cell Disease Association of America Launches User-Friendly Clinical Trial Finder<\/span><\/a><\/h2>\n

\u2013 Genetic Engineering & Biotechnology News (October 15, 2021)<\/p>\n<\/div>\n

\n

New partnership aims to save lives, spread awareness for sickle cell disease<\/span><\/a><\/h2>\n

\u2013 WBALTV (September 29, 2021)<\/p>\n<\/div>\n

\n

Pain That\u2019s Real, But Not Believed: Spreading Awareness of Sickle Cell Disease<\/span><\/a><\/h2>\n

\u2013 NBCLX (September 29, 2021)<\/p>\n<\/div>\n

\n

What is Sickle Cell Disease?<\/span><\/a><\/h2>\n

\u2013 U.S. News & World Report (September 20, 2021)<\/p>\n<\/div>\n

\n

Could Gene Therapy Cure Sickle Cell Disease? Two New Studies Raise Hopes<\/span><\/a><\/h2>\n

\u2013 HealthDay (December 5, 2020)<\/p>\n<\/div>\n

\n

Lives with Sickle Cell Disease Matter<\/span><\/a><\/h2>\n

\u2013 National Black Nurses Association Summer 2020 Newsletter<\/p>\n<\/div>\n

\n

Fears about COVID-19 are complicating care for patients with sickle cell disease<\/span><\/a><\/h2>\n

\u2013 STAT (September 17, 2020)<\/p>\n<\/div>\n

\n

US approves new drug to manage sickle cell disease<\/span><\/a><\/h2>\n

\u2013 APNews.com (November 15, 2019)<\/p>\n<\/div>\n

\n

Bipartisan Bill Aimed at Fighting Sickle Cell Disease Signed into Law by Trump<\/span><\/a><\/h2>\n

\u2013 NBCNews.com (December 19, 2018)<\/span><\/p>\n<\/div>\n

\n

Gene Therapies Could Transform the Treatment of Sickle Cell Disease<\/span><\/a>\u00a0<\/span><\/h2>\n

\u2013 Washington Post (December 3, 2018)<\/span><\/p>\n<\/div>\n

\n

Madison w\/ Beverly Francis-Gibson<\/span><\/a>\u00a0<\/span><\/h2>\n

\u2013 Joe Madison the Black Eagle (November 21, 2018)<\/span><\/p>\n<\/div>\n

\n

Legislation & Advocacy Efforts Needed in the Fight Against Sickle Cell Disease<\/span><\/a><\/h2>\n

\u2013 Rare Disease Report (October 18, 2018)<\/span><\/p>\n<\/div>\n

\n

Sickle Cell Disease Association of America, Inc., the Sickle Cell Foundation of Georgia, Inc., and the American Red Cross partner on national blood drives initiative<\/span><\/a><\/h2>\n

\u2013 PR Newswire (October 10, 2018)<\/span><\/p>\n<\/div>\n

\n

\u00a0<\/span>Sickle Cell Disease Group Launches Registry for Oft-Ignored Patients<\/span><\/a><\/h2>\n

\u2013 <\/span>Associations Now (June 27, 2018 )<\/span><\/p>\n<\/div>\n

\n

Sickle Cell Disease Association and Emmaus Partner to Increase Education, Awareness<\/span><\/a>\u00a0<\/span><\/h2>\n

– Sickle Cell Anemia News (June 26, 2018)<\/span><\/p>\n<\/div>\n

\n

\u00a0<\/i>Sickle Cell Disease Association of America, Inc. Partners With Emmaus Life Sciences, Inc.<\/span><\/a><\/h2>\n

– Business Wire (June 19, 2018<\/span>)<\/span><\/p>\n<\/div>\n

\n

Joining Hands: SCDAA and Emmaus Medical Partner to Fight Sickle Cell Disease<\/span><\/a><\/h2>\n

– Rare Disease Report (June 19, 2018)<\/span><\/p>\n<\/div>\n

\n

Sickle Cell Disease Association of America, Inc. Partners With Emmaus Life Sciences, Inc.<\/span><\/a><\/h2>\n

– <\/span>Baltimore Business Journals (June 19, 2018)<\/span><\/p>\n<\/div>\n

\n

Sickle Cell Draws Multiple Challenges to the Surface<\/span><\/a> <\/i><\/h2>\n

\u2013 American Association of Medical Assistants (May\/June 2018)<\/span><\/p>\n<\/div>\n

\n

Sickle Cell Groups, Pfizer Work to Bring Black Americans Into Clinical Trials<\/span><\/a><\/h2>\n

\u2013 Sickle Cell Anemia News (May 3, 2018)<\/span><\/p>\n<\/div>\n

\n

Terrific Teens (& Fabulous Families) \u2013 Stories of Resilience, Love and Creativity When Living with Sickle Cell Disease<\/span><\/a><\/h2>\n

–\u00a0<\/span>Sickle Cell Information Center (March 2018)<\/span><\/p>\n<\/div>\n

\n

Sickle Cell Disease Association Announces National Child Ambassador<\/span><\/a><\/h2>\n

– <\/span>AfroPhilly.com (November 13, 2017)<\/span><\/p>\n<\/div>\n

\n

New Poll Highlights Ignorance About Sickle Cell Disease<\/span><\/a><\/h2>\n

– Baltimore Afro Newspaper (October 5, 2017)<\/span><\/p>\n<\/div>\n","protected":false},"excerpt":{"rendered":"

Sickle Cell Disease Association of America, Inc. (SCDAA) is the leader in promoting and advancing initiatives focused on people affected by sickle cell conditions worldwide. 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