{"id":366,"date":"2018-07-09T14:19:34","date_gmt":"2018-07-09T20:19:34","guid":{"rendered":"https:\/\/scda.dojiggyengage.com\/?page_id=366"},"modified":"2022-01-14T21:01:41","modified_gmt":"2022-01-14T21:01:41","slug":"national-sickle-cell-advocacy-network","status":"publish","type":"page","link":"https:\/\/www.sicklecelldisease.org\/advocacy\/national-sickle-cell-advocacy-network\/","title":{"rendered":"National Sickle Cell Advocacy Network"},"content":{"rendered":"<p>The National Sickle Cell Advocacy Network (NSCAN) is a national network of patients and families looking to advocate, educate and help people living with or who are affected by sickle cell disease. We know that there is immeasurable strength in numbers. Collectively, our goal is to ensure that those affected by sickle cell disease know that they are not alone.<\/p>\n<p>With the help from our community-based organizations, we have created a strong network that includes caregivers, clinicians, stakeholders and experts. Sickle Cell Disease Association of America, Inc. (SCDAA) seeks to \u00a0increase its network to include more individuals that have the energy and drive to recruit others and increase advocacy and awareness within the sickle cell community!<a href=\"https:\/\/www.sicklecelldisease.org\/project\/the-president-signs-the-sickle-cell-treatment-act-of-2018\/\"><\/a><\/p>\n<p><a href=\"https:\/\/www.sicklecelldisease.org\/project\/the-president-signs-the-sickle-cell-treatment-act-of-2018\/\">Click here to learn more about our advocacy efforts and campaigns.<\/a><\/p>\n<p>The role of NSCAN members include the following:<br \/>\n<strong>P<\/strong>romote Awareness for the importance of finding an affordable cure to those suffering with Sickle Cell Disease<br \/>\n<strong>I<\/strong>nspire community support by keeping the public informed of SCDAA programs, news and events<br \/>\n<strong>O<\/strong>ffer assistance in strengthening the community.<br \/>\n<strong>N<\/strong>avigate valuable information to other networks dedicated to continuous medical, program, advocacy and research<br \/>\n<strong>E<\/strong>ducate other Advocates, patients and families on the importance of understanding the effects of Sickle CellDisease<br \/>\n<strong>E<\/strong>ncourage legislative, community and corporate advocacy for those consumers and families affected by Sickle Cell Disease and;<br \/>\n<strong>R<\/strong>aise funds and\/or awareness to further the mission of SCDAA\u2019s national programs and efforts<\/p>\n<p>For more information about how you can join NSCAN, please contact SCDAA&#8217;s Government Relations Manager, John Otsuki, at <a href=\"matilto:jotsuki@sicklecelldisease.org\">jotsuki@sicklecelldisease.org<\/a>.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>The National Sickle Cell Advocacy Network (NSCAN) is a national network of patients and families looking to advocate, educate and help people living with or who are affected by sickle cell disease. We know that there is immeasurable strength in numbers. Collectively, our goal is to ensure that those affected by sickle cell disease know [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":1785,"parent":355,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-366","page","type-page","status-publish","has-post-thumbnail","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v24.0 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>National Sickle Cell Advocacy Network - Sickle Cell Disease Association of America Inc.<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.sicklecelldisease.org\/advocacy\/national-sickle-cell-advocacy-network\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"National Sickle Cell Advocacy Network - Sickle Cell Disease Association of America Inc.\" \/>\n<meta property=\"og:description\" content=\"The National Sickle Cell Advocacy Network (NSCAN) is a national network of patients and families looking to advocate, educate and help people living with or who are affected by sickle cell disease. 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