{"id":358,"date":"2018-07-09T14:18:20","date_gmt":"2018-07-09T20:18:20","guid":{"rendered":"https:\/\/scda.dojiggyengage.com\/?page_id=358"},"modified":"2018-07-09T14:18:20","modified_gmt":"2018-07-09T20:18:20","slug":"legislative-initiatives","status":"publish","type":"page","link":"https:\/\/www.sicklecelldisease.org\/advocacy\/legislative-initiatives\/","title":{"rendered":"Legislative Initiatives"},"content":{"rendered":"
\n
\n
\n
\n
<\/div>\n<\/div>\n

S.2465, the Sickle Cell Disease Research, Surveillance, Prevention and Treatment Act of 2018<\/h2>\n<\/div>\n<\/div>\n<\/div>\n
\n
\n
\n
\n\"\"<\/a>In February 2018, the sickle cell community celebrated with the announcement of two legislative victories in Congress. First, the U.S. House of Representatives passed H.R. 2410 on February 26, 2018, the\u00a0Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act<\/strong>, which was introduced on May 11, 2017, by Rep. Danny Davis (D-IL). Then, on February 28, 2018, Senator Cory Booker (D-NJ) and Senator Tim Scott (R-SC) introduced\u00a0S.2465<\/strong>, the Senate companion bill to H.R. 2410 into the Senate.
\nAbout HR 2410<\/strong>
\nH.R. 2410 would authorize the Secretary of Health and Human Services to conduct surveillance and collect data on the prevalence of sickle cell disease (SCD). In addition, the bill would authorize the Secretary to develop public health initiatives that support community-based organizations in education activities and to support regional and state health departments in testing to identify SCD.<\/p>\n

Click\u00a0here<\/a><\/strong>\u00a0to read the key points of the legislation.<\/p>\n

\u2014\u2014\u2014\u2014\u2014\u2014\u2014\u2014\u2014\u2014\u2014\u2014\u2014\u2014\u2013<\/p>\n

NEW S. 2465 Advocacy Toolkit<\/strong><\/h3>\n

The toolkit was created in collaboration with\u00a0Sick Cells,<\/a> Sickle Cell 101,<\/a>\u00a0The\u00a0SickleCellForum<\/a>,\u00a0#BoldLipsforSickleCell,<\/a>\u00a0the\u00a0EveryLife Foundation,<\/a>\u00a0and\u00a0Sickle Cell Disease Association of\u00a0<\/a>America (SCDAA)<\/a>.<\/p>\n

Click\u00a0HERE<\/a><\/strong>\u00a0to access it.<\/p>\n

\u2014\u2014\u2014\u2014\u2014\u2014\u2014\u2014\u2014\u2014\u2014\u2014\u2014\u2014\u2014<\/p>\n

Key Talking Points about S.2465
\n<\/strong><\/h3>\n
    \n
  • S.2465 \u2013 Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act of 2018- was introduced on February 28, 2018 by Sen Tim Scott [R-SC] and cosponsored by Sen. Booker, Cory A. [D-NJ]; Sen. Jones, Doug [D-AL]; Sen. Cassidy, Bill [R-LA]; Sen. Stabenow, Debbie [D-MI]; and Sen. Warren, Elizabeth [D-MA]<\/li>\n
  • S.2465 represents a commitment by the government to continue much-needed research geared towards increasing understanding of prevalence, distribution, outcomes, and therapies associated with SCD\n
      \n
    • The legislation reauthorizes SCD prevention and treatment grants awarded by the Health Resources and Service Administration (HRSA)<\/li>\n
    • Authorizes the Centers for Disease Control and Prevention (CDC) to award SCD surveillance grants to states, academic institutions, and non-profit organizations<\/li>\n<\/ul>\n<\/li>\n
    • It is imperative that the Senate HELP committee take action to move the bill towards a floor vote with the ultimate goal of cohesive passage by both Congressional houses and signature by the President into law<\/li>\n<\/ul>\n

       \n<\/p><\/div>\n<\/section>\n<\/div>\n<\/div>\n","protected":false},"excerpt":{"rendered":"

      S.2465, the Sickle Cell Disease Research, Surveillance, Prevention and Treatment Act of 2018 In February 2018, the sickle cell community celebrated with the announcement of two legislative victories in Congress. First, the U.S. House of Representatives passed H.R. 2410 on February 26, 2018, the\u00a0Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act, which was introduced […]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":355,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-358","page","type-page","status-publish","hentry"],"yoast_head":"\nLegislative Initiatives - Sickle Cell Disease Association of America Inc.<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.sicklecelldisease.org\/advocacy\/legislative-initiatives\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Legislative Initiatives - Sickle Cell Disease Association of America Inc.\" \/>\n<meta property=\"og:description\" content=\"S.2465, the Sickle Cell Disease Research, Surveillance, Prevention and Treatment Act of 2018 In February 2018, the sickle cell community celebrated with the announcement of two legislative victories in Congress. First, the U.S. House of Representatives passed H.R. 2410 on February 26, 2018, the\u00a0Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act, which was introduced […]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.sicklecelldisease.org\/advocacy\/legislative-initiatives\/\" \/>\n<meta property=\"og:site_name\" content=\"Sickle Cell Disease Association of America Inc.\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data1\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.sicklecelldisease.org\/advocacy\/legislative-initiatives\/\",\"url\":\"https:\/\/www.sicklecelldisease.org\/advocacy\/legislative-initiatives\/\",\"name\":\"Legislative Initiatives - Sickle Cell Disease Association of America Inc.\",\"isPartOf\":{\"@id\":\"https:\/\/www.sicklecelldisease.org\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/www.sicklecelldisease.org\/advocacy\/legislative-initiatives\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/www.sicklecelldisease.org\/advocacy\/legislative-initiatives\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2018\/02\/Legislation-image.jpg\",\"datePublished\":\"2018-07-09T20:18:20+00:00\",\"dateModified\":\"2018-07-09T20:18:20+00:00\",\"breadcrumb\":{\"@id\":\"https:\/\/www.sicklecelldisease.org\/advocacy\/legislative-initiatives\/#breadcrumb\"},\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/www.sicklecelldisease.org\/advocacy\/legislative-initiatives\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\/\/www.sicklecelldisease.org\/advocacy\/legislative-initiatives\/#primaryimage\",\"url\":\"\",\"contentUrl\":\"\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/www.sicklecelldisease.org\/advocacy\/legislative-initiatives\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/www.sicklecelldisease.org\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Advocacy\",\"item\":\"https:\/\/www.sicklecelldisease.org\/advocacy\/\"},{\"@type\":\"ListItem\",\"position\":3,\"name\":\"Legislative Initiatives\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/www.sicklecelldisease.org\/#website\",\"url\":\"https:\/\/www.sicklecelldisease.org\/\",\"name\":\"Sickle Cell Disease Association of America Inc.\",\"description\":\"\",\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/www.sicklecelldisease.org\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"en-US\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Legislative Initiatives - Sickle Cell Disease Association of America Inc.","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/www.sicklecelldisease.org\/advocacy\/legislative-initiatives\/","og_locale":"en_US","og_type":"article","og_title":"Legislative Initiatives - Sickle Cell Disease Association of America Inc.","og_description":"S.2465, the Sickle Cell Disease Research, Surveillance, Prevention and Treatment Act of 2018 In February 2018, the sickle cell community celebrated with the announcement of two legislative victories in Congress. First, the U.S. House of Representatives passed H.R. 2410 on February 26, 2018, the\u00a0Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act, which was introduced […]","og_url":"https:\/\/www.sicklecelldisease.org\/advocacy\/legislative-initiatives\/","og_site_name":"Sickle Cell Disease Association of America Inc.","twitter_card":"summary_large_image","twitter_misc":{"Est. reading time":"2 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"WebPage","@id":"https:\/\/www.sicklecelldisease.org\/advocacy\/legislative-initiatives\/","url":"https:\/\/www.sicklecelldisease.org\/advocacy\/legislative-initiatives\/","name":"Legislative Initiatives - Sickle Cell Disease Association of America Inc.","isPartOf":{"@id":"https:\/\/www.sicklecelldisease.org\/#website"},"primaryImageOfPage":{"@id":"https:\/\/www.sicklecelldisease.org\/advocacy\/legislative-initiatives\/#primaryimage"},"image":{"@id":"https:\/\/www.sicklecelldisease.org\/advocacy\/legislative-initiatives\/#primaryimage"},"thumbnailUrl":"https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2018\/02\/Legislation-image.jpg","datePublished":"2018-07-09T20:18:20+00:00","dateModified":"2018-07-09T20:18:20+00:00","breadcrumb":{"@id":"https:\/\/www.sicklecelldisease.org\/advocacy\/legislative-initiatives\/#breadcrumb"},"inLanguage":"en-US","potentialAction":[{"@type":"ReadAction","target":["https:\/\/www.sicklecelldisease.org\/advocacy\/legislative-initiatives\/"]}]},{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/www.sicklecelldisease.org\/advocacy\/legislative-initiatives\/#primaryimage","url":"","contentUrl":""},{"@type":"BreadcrumbList","@id":"https:\/\/www.sicklecelldisease.org\/advocacy\/legislative-initiatives\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/www.sicklecelldisease.org\/"},{"@type":"ListItem","position":2,"name":"Advocacy","item":"https:\/\/www.sicklecelldisease.org\/advocacy\/"},{"@type":"ListItem","position":3,"name":"Legislative Initiatives"}]},{"@type":"WebSite","@id":"https:\/\/www.sicklecelldisease.org\/#website","url":"https:\/\/www.sicklecelldisease.org\/","name":"Sickle Cell Disease Association of America Inc.","description":"","potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.sicklecelldisease.org\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"en-US"}]}},"_links":{"self":[{"href":"https:\/\/www.sicklecelldisease.org\/wp-json\/wp\/v2\/pages\/358","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.sicklecelldisease.org\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.sicklecelldisease.org\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.sicklecelldisease.org\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.sicklecelldisease.org\/wp-json\/wp\/v2\/comments?post=358"}],"version-history":[{"count":0,"href":"https:\/\/www.sicklecelldisease.org\/wp-json\/wp\/v2\/pages\/358\/revisions"}],"up":[{"embeddable":true,"href":"https:\/\/www.sicklecelldisease.org\/wp-json\/wp\/v2\/pages\/355"}],"wp:attachment":[{"href":"https:\/\/www.sicklecelldisease.org\/wp-json\/wp\/v2\/media?parent=358"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}