{"id":3105,"global_id":"www.sicklecelldisease.org?id=3105","global_id_lineage":["www.sicklecelldisease.org?id=3105"],"author":"1","status":"publish","date":"2019-07-02 17:44:38","date_utc":"2019-07-02 17:44:38","modified":"2019-07-02 17:44:38","modified_utc":"2019-07-02 17:44:38","url":"https:\/\/www.sicklecelldisease.org\/event\/ash-rc-sickle-cell-disease-community-engagement-workshop\/","rest_url":"https:\/\/www.sicklecelldisease.org\/wp-json\/tribe\/events\/v1\/events\/3105","title":"ASH RC Sickle Cell Disease Community Engagement Workshop","description":"<p>The ASH Research Collaborative (ASH RC) is hosting a <a href=\"http:\/\/ci.hematology.org\/go\/1\/56c052b7f17aa811959f1361e3e000aa\/25036\/e7b5d7a15cd89d78\/43b8b15e7ee382c6a6473c7b9fa19141\">Sickle Cell Disease (SCD) Community Engagement Workshop<\/a> on <strong>July 13, 2019 <\/strong>in <strong>Orlando, FL. <\/strong>The SCD Clinical Trials Network is committed to having individuals living with SCD involved early and in a meaningful way as the network develops strategies to improve enrollment, design, and execution of clinical trials. The goals of the workshop are to 1) understand barriers to clinical trial participation, as well as identify solutions to overcome challenges and; 2) prioritize research areas of interest to the community.<br \/>\nLearnings from the workshop will help us develop a <em><strong>SCD Patient-Oriented Research Priority Report<\/strong><\/em> to be shared with SCD community stakeholders, establishing a common understanding of goals for community-focused SCD research.\u00a0This report will be a living document that will be reevaluated as research, novel treatments, and therapeutics are developed further. \u00a0Please assist us by spreading the word about the workshop within your SCD community.<\/p>\n<div class=\"sg-wrapper\">\n<div class=\"sg-content\" id=\"sg-skipnav-target\">\n<div class=\"sg-question-set\">\n<div class=\"sg-question sg-type-instruction \" id=\"sgE-5056092-1-83-box\">\n<div class=\"sg-instructions\"><span><strong>Questions about this workshop?<\/strong><br \/>\nPlease contact <strong>LaTasha Lee (202-292-6005) <\/strong>or <strong>Shauna Whisenton (202-552-4928) <\/strong>at the ASH Research Collaborative or email them at <a href=\"mailto:SCD-CTN@ASHResearchCollaborative.org\"><strong>SCD-CTN@ASHResearchCollaborative.org<\/strong><\/a><\/span>.<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>","excerpt":"","slug":"ash-rc-sickle-cell-disease-community-engagement-workshop","image":{"url":"https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2019\/07\/ASHLogo.png","id":3106,"extension":"png","width":500,"height":194,"sizes":{"woocommerce_thumbnail":{"width":300,"height":194,"mime-type":"image\/png","uncropped":false,"url":"https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2019\/07\/ASHLogo-300x194.png"},"woocommerce_gallery_thumbnail":{"width":100,"height":100,"mime-type":"image\/png","url":"https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2019\/07\/ASHLogo-100x100.png"},"medium":{"width":300,"height":116,"mime-type":"image\/png","url":"https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2019\/07\/ASHLogo-300x116.png"},"thumbnail":{"width":150,"height":150,"mime-type":"image\/png","url":"https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2019\/07\/ASHLogo-150x150.png"}}},"all_day":false,"start_date":"2019-07-13 11:00:00","start_date_details":{"year":"2019","month":"07","day":"13","hour":"11","minutes":"00","seconds":"00"},"end_date":"2019-07-13 15:30:00","end_date_details":{"year":"2019","month":"07","day":"13","hour":"15","minutes":"30","seconds":"00"},"utc_start_date":"2019-07-13 11:00:00","utc_start_date_details":{"year":"2019","month":"07","day":"13","hour":"11","minutes":"00","seconds":"00"},"utc_end_date":"2019-07-13 15:30:00","utc_end_date_details":{"year":"2019","month":"07","day":"13","hour":"15","minutes":"30","seconds":"00"},"timezone":"UTC","timezone_abbr":"UTC","cost":"","cost_details":{"currency_symbol":"","currency_position":"prefix","values":[]},"website":"https:\/\/www.surveygizmo.com\/s3\/5056092\/Orlando-ASH-Workshop-Questionnaire","show_map":true,"show_map_link":true,"hide_from_listings":false,"sticky":false,"featured":false,"categories":[],"tags":[],"venue":[],"organizer":[],"json_ld":{"@context":"http:\/\/schema.org","@type":"Event","name":"ASH RC Sickle Cell Disease Community Engagement Workshop","description":"&lt;p&gt;The ASH Research Collaborative (ASH RC) is hosting a Sickle Cell Disease (SCD) Community Engagement Workshop on July 13, 2019 in Orlando, FL. The SCD Clinical Trials Network is committed to having individuals living with SCD involved early and in a meaningful way as the network develops strategies to improve enrollment, design, and execution of [&hellip;]&lt;\/p&gt;\\n","image":"https:\/\/www.sicklecelldisease.org\/wp-content\/uploads\/2019\/07\/ASHLogo.png","url":"https:\/\/www.sicklecelldisease.org\/event\/ash-rc-sickle-cell-disease-community-engagement-workshop\/","startDate":"2019-07-13T11:00:00+00:00","endDate":"2019-07-13T15:30:00+00:00"}}