{"id":2990,"date":"2019-06-12T17:24:38","date_gmt":"2019-06-12T17:24:38","guid":{"rendered":"https:\/\/www.sicklecelldisease.org\/?p=2990"},"modified":"2019-06-12T17:24:38","modified_gmt":"2019-06-12T17:24:38","slug":"congressional-briefing-on-progress-in-sickle-cell-disease-treatment-policy-implications","status":"publish","type":"post","link":"https:\/\/www.sicklecelldisease.org\/2019\/06\/12\/congressional-briefing-on-progress-in-sickle-cell-disease-treatment-policy-implications\/","title":{"rendered":"Congressional Briefing on Progress in Sickle Cell Disease Treatment & Policy Implications"},"content":{"rendered":"

TUESDAY, JUNE 18, 2019 | 2:30 \u2013 3:30 PM
\n<\/strong>DIRKSEN SENATE OFFICE BUILDING, ROOM G50
\nRSVP: Betsy Foss-Campbell, bfoss@asgct.org<\/a>
\n<\/strong>
\nJoin us for updates on Gene therapy approaches presented by\u00a0<\/strong>prominent scientists in the field
\n<\/strong>How policymakers can support the development of\u00a0<\/em><\/strong>treatment options for sickle cell disease<\/em><\/strong>
\nSPEAKERS<\/strong>
\nTim Scott<\/strong>, United States Senator
\nFrancesca Cook<\/strong>, MPH, Government Relations Committee member, ASGCT; Senior Director, Pricing and\u00a0Market Access, REGENXBIO
\nJulie Kanter<\/strong>, MD, Director of Adult Sickle Cell Program; Associate Professor of Hematology and Oncology, University of Alabama at Birmingham
\nPunam Malik<\/strong>, MD, Professor of Pediatrics, Marjorie Johnson Chair of Gene and Cell Therapy, Director, Cincinnati Comprehensive Sickle Cell Center; Cancer and Blood Disease Institute, Cincinnati Children\u2019s Hospital
\nRodrick Murray<\/strong>, Patient advocate providing a personal story on gene therapy\u2019s value for treating\u00a0sickle cell disease
\nMatthew Porteus<\/strong>, MD, PhD, Professor of Pediatrics (Stem Cell Transplantation), Stanford University
\nDavid Williams<\/strong>, MD, Senior Vice President and Chief Scientific Officer, Boston Children\u2019s Hospital; Chief,\u00a0Hematology\/Oncology, Boston Children\u2019s Hospital; President, Dana-Farber\/Boston Children\u2019s Cancer\u00a0and Blood Disorders Center; Leland Fikes Professor of Pediatrics, Harvard Medical School
\nHow can policymakers help support the development of gene therapies for\u00a0<\/strong>sickle cell disease?<\/strong><\/p>\n